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Alzheimer's Caregiver
Story
A
Scottish Memory Loss Memoir Why
all people should take Phosphatidyl
serine (PS) and Phosphatidyl choline (PC)
for a Better Memory Stop
Brain-Damage from Stroke & Avoid Alzheimer's at the Same Time Cell
Phone Dangers Learning
About Memory Loss Through Autism's Lessons Terminology
of Memory Loss: Glossary & The
Most
Severe Type of Memory Loss Age
Related Memory Loss Problems I
look forward to having you as a subscriber. Rest assured, your email address will NEVER
be shared with others.
Enjoy & thank you!
Dr Jill
The Memory Doc by Jill Joyce PhD
at "http://www.thememorydoc.com/ezine.html"
**********************************************
In Memorial
Betty Santerre
was a devoted mother, beloved and survived by her 11 children and husband
Rolland. Betty passed away August
10, 2005 after suffering from Alzheimer's for several years. This newsletter
talks a bit about the year prior to her death...
Volume 1/Issue No 4 September 30, 2004
***********************************************
In This Issue:
* Mission Statement
* Memory Quote
* Article About My Sister/ Victor Frankl/ Note to My Sister-- Jeanine--as She
Cares for Her Parents with Alzheimer's * Freebies & the Memory Loss Prevention & Recovery
Institute * Please Refer This Newsletter
***********************************************
Welcome to "TheMemoryDoc.Com," the Internet magazine for
people of all ages who want to learn more about preserving and
protecting the brain from memory loss and also for those who
want to help persons who already have memory loss to recover
and overcome this problem.
* The Memory Doc's Mission Statement is: To inform people in
simple terms about ways to prevent and overcome memory loss
using the most professional and therapeutic methods possible by
offering awareness, education and new research.
***********************************************
QUOTE OF THE WEEK
Viktor E. Frankl
From "Man's Search for Meaning"
"When a man finds that it is his destiny to suffer, he will
have to accept his suffering as his task: his single and unique
task. He will have to acknowledge the fact that even in
suffering he is unique and alone in the universe. No one can
relieve him or suffer in his place. His unique opportunity lies
in the way in which he bears his burden."
***********************************************
Hello, everyone--
Just arrived back to Florida after running away from Hurricane
Jeanne! Hard to believe this has been going on for so long! But
I'm back and the state of Florida appears to be recovering.
Today I'll be talking about another "Jeanne," who also packs
quite a bit of power, but the good kind: the power of love. I
will be examining her as a caregiver in her role to her parents
with memory loss.
Her lessons are vital to all of us who wish to preserve our
memories and avoid the stage of life she is tackling. At the
latter stages of serious memory loss, many families and
caregivers must simply struggle to help loved ones hold on to
their human dignity.
And though I'm anxious to preserve any in tact memory, I'll
never tell you that a person in the latter stages of
Alzheimer's can defeat that damage. I'll never say one who has
Korsakoff's syndrome from alcohol poisoning--will get over it.
I won't tell you serious mental retardation can just be cured.
It cannot.
I will tell you there are ways to improve the quality of life
after a memory loss is full-fledged. I will even tell you there
are going to be activities you can do, medications they can
take, vitamins, nutrition and solid routines you can develop
which will make life better for everyone.
Should you decide to take none of the suggested actions (if you
have a severe memory loss situation), that is a choice you will
have to make. However, it is not the choice I would make if I
had a relative with a serious memory loss (unless I was forced
to) because I have seen so much good come when people take the
time to deal with it.
Perhaps this true story will inspire but also will offer
motivation to continue preventing memory loss in yourself and
your family . . .
MY SISTER-IN-LAW JEANINE JOYCE
& HER PARENTS WITH ALZHEIMER'S
My sister-in-law, Jeanine Joyce, has been helping both her
parents through their mid and final stages of Alzheimer's. Her
efforts have been absolutely exemplary. Perhaps she doesn't
realize the influence she is having on the rest of the family,
but I have never witnessed anyone so incredibly inspirational,
practical, and brave.
For the longest time, Jeanine's parents were in Florida while
she was in the North East U.S. As their Alzheimer's became
apparent, Jeanine began to visit them more and more in the home
she finally chose for them when they could no longer be alone.
Jeanine didn't just choose any home. She investigated. She
researched. Then she picked a top-notch place with the highest
reputation and credentials in the Alzheimer's industry. (I
won't name them; I'm not looking for lawsuits here).
Nonetheless, when she or her siblings would visit, they would
find nothing done properly for her parents. She was very
frustrated as her expectations for the facility were so much
higher. Finally, she made the decision she wanted to move them
back up North near her home so she could visit them daily.
First of all, the process she had to go through to do this was
amazing. But since they have been near her home, she has been
able to go to the facility and visit them daily. She says, even
at that, she must still tell the staff repeatedly the simplest
things they should already be doing, like--to turn her mother
over regularly in order to prevent bed sores. Or things like--
Would they please give her mom a bib rather than allow her to
drip all over her clothes? She often finds her parents not
cared for as she hoped even at the facility where they know
Jeanine will be coming for a daily visit.
When she hangs out with her parents and they ask her what's up
at home, she'll often include them in simple things like talk
about her upcoming grocery store trip. She'll ask them to do
routine things they always did-- like help her prepare her
grocery list. She realizes the neglect of daily chores and
activities is adding to their dull minds.
She also takes games with her to their bedside and they play
and chat. Sometimes she plays simple concentration games or
card games, particularly with matching or naming activities.
When their food comes, she'll talk to them about things
written on their milk cartons, etc. They'll discuss whether a
word is spelled properly on the carton or not and try to
remember how they recall it was spelled. This is easy when
someone actually takes the time to hang out awhile and just let
normal conversations and discussions happen.
Jeanine's parents even recognize her better than they did
before she moved them and she was unable to spend time with
them because they were in different states.
Her mother used to say she didn't like it where they were in
Florida. Now her mother is saying, "I like it here." So Jeanine
knows the care has definitely improved.
For Jeanine, this change and bringing her parents to her home
area is about their dignity and her peace of mind. She knows
her mother wouldn't intentionally walk around wearing a sloppy
shirt with spills all over it. Now she can help to make sure
that's not the way she is living.
She also knows that when one of them dies the other one
probably won't be far behind. Slowly, she watches and each day
she realizes she will soon need to let go. Her mother is
weakening. Her father is a bit stronger. But she is there for
both of them.
For Jeanine, and all of you out there with relatives, spouses,
parents or friends suffering from something like final stage
Alzheimer's, what Jeanine has done will give her and her
siblings peace for many years to come.
This may be my opinion, but I believe it is right to do the
responsible, dignified thing and be there for those who were
there for you when you were the weak one if it is at all
possible. If not, somehow, we should at least be sure that our
loved ones are cared for as we would attempt to care for them.
THOUGHTS FROM VICTOR FRANKL
Read the opinion of psychiatrist Victor Frankl quoted
regarding his experiences dealing with those suffering in the
prison camps of Germany:
"What was really needed was a fundamental change in our
attitude toward life. We had to learn ourselves, and
furthermore, we had to teach the despairing men that it did not
really matter what we expected from life, but rather what life
expected from us. We needed to stop asking about the meaning of
life, and instead to think of ourselves as those who were being
questioned by life daily and hourly. Our answer must consist
not in talk and meditation, but in right action and in right
conduct. Life ultimately means taking the responsibility to
find the right answer to its problems and to fulfill the tasks
which it constantly sets for each individual."
Frankl goes on to say that our unique opportunities lie in the
way we each bear our burdens. Ah, yes. There it is again. The
human challenge lies in choosing to respond well no matter how
much we hurt.
A NOTE TO MY SISTER
Jeanine, please accept my applause. You are always one of my
biggest heroes for this and so much more. You've been going
through this for several years now and you just keep smiling
and doing the right thing. You made it through two wonderful
weddings this summer for two of your children and you were fun
and loving and available emotionally to all of us just as you
always are. You are truly one of the most impressive human
beings I have ever known. Please join me in applauding my
sister-in-law and in-love, Jeanine Joyce.
Until next time--as Bob Hope would say--thanks for the
MEMORIES! Yes, God, thanks for our memories, the ones seated in
our brains and the images projected there as well.
Thanks for visiting. Have a wonderful week, stay out of
hurricanes, drop me an email when you have time, and scroll
down to learn more about this project.
Best Regards from the Memory Doc,
Dr. Jill
E-Mail: drjill@thememorydoc.com
http://www.thememorydoc.com or
http://www.dontforgetmemoryloss.com
Toll free: 1-877-490-3538
Local: 1-954-323-8474
***********************************************
Volume
1
February 21, 2005
*
Editor's Note
*
A Scottish Memory Loss Memoir from Betty Santerre
and Her Daughter
Jeanine Joyce
***********************************************
Dear
Friends,
This
past week, my sister-in-law, Jeanine Joyce, and
her mom, Betty Santerre, sent me this
beautiful poem
accompanied by a little story.
Jeanine
commented that the two of them picked this
out to send so people might think a little
bit more
about how to treat persons with memory
loss.
Betty
has Alzheimer's and it is closing in on her.
She is having a rough time right now, so
please
pray for her.
Here
is Betty's poem as she prepares to move on
to a better place. Jeanine always signs
lower
case (like e.e. cummings). So I'll leave
her note
for you as I received it . . .
***********************************************
*
A Scottish Memory Loss Memoir from Betty Santerre
and Her Daughter, Jeanine Joyce
Thought
you'd all be interested in reading this
and maybe pass it on . . . hugs,
jeanine
and mom
***********************************************
When
an old lady died in the geriatric ward of a small
hospital near Dundee, Scotland, it was
believed she had
nothing left of any value.
Later,
when the nurses were going through her meager
possessions, they found this poem.
Its quality and
content so impressed the staff that copies
were made
and distributed to every nurse in the
hospital.
One
nurse took her copy to Ireland.
The
old lady's sole bequest to posterity has since
appeared in the Christmas edition of the
News Magazine
of the North Ireland Association for
Mental Health.
A
slide presentation has also been made based on her
simple, but eloquent, poem.
And
this little old Scottish lady, with nothing
left to give to the world, is now the
author of
this "anonymous" poem winging
across the Internet.
So
if you judge those with dementia and assume they have nothing left to offer
inside--remember this. While this little woman sat looking quite lost in her
situation and bereft of her abilities--she composed this lovely poem:
Crabby Old Woman
What do you see, nurses?
What
do you see?
What are you thinking
When you're looking at me?
A crabby old woman,
Not very wise,
Uncertain of habit,
With faraway eyes?
Who dribbles her food
And makes no reply
When you say in a loud voice,
"I do wish you'd try!"
Who seems not to notice
The things that you do,
And forever is losing
A stocking or shoe?
Who, resisting or not,
Lets you do as you will,
With bathing and feeding,
The long day to fill?
Is that what you're thinking?
Is that what you see?
Then open your eyes, nurse,
You're not looking at me.
I'll tell you who I am
As I sit here so still,
As I do at your bidding,
As I eat at your will.
I'm a small child of ten
With a father and mother,
Brothers and sisters,
Who love one another.
A young girl of sixteen
With wings on her feet
Dreaming that soon now
A lover she'll meet.
A bride soon at twenty,
My heart gives a leap,
Remembering the vows
That I promised to keep
At twenty-five now,
I have young of my own,
Who need me to guide
And a secure happy home.
A woman of thirty,
My young now grown fast,
Bound to each other
With ties that should last.
At forty, my young sons
Have grown and are gone,
But my man's beside me
To see I don't mourn.
At fifty once more,
Babies play round my knee,
Again we know children,
My loved one and me.
Dark days are upon me,
My husband is dead,
I look at the future,
I shudder with dread.
For my young are all rearing
Young of their own,
And I think of the years
And the love that I've known.
I'm now an old woman
And nature is cruel;
'Tis jest to make old age
Look like a fool.
The body, it crumbles,
Grace and vigor depart,
There is now a stone
Where I once had a heart.
But inside this old carcass
A young girl still dwells,
And now and again,
My battered heart swells.
I remember the joys,
I remember the pain,
And I'm loving and living
Life over again.
I think of the years
All too few, gone too fast,
And accept the stark fact
That nothing can last.
So open your eyes, people,
Open and see,
Not a crabby old woman;
Look closer . . . see ME!!
Remember
this poem when you next meet an old
person who you might brush aside without
looking
at the young soul within . . .
we may,
one day, be there as well!
******************************************
How
touching. . .
Truth
being told is sometimes hard to receive,
but even harder to speak.
I'm grateful for this little story and
poem
from Jeanine and her mom Betty.
Thank
you so much for sharing with all of us at
this difficult time.
Blessings
to you, your mom, your ten brothers and sisters and your dad, Rolland, who is also
struggling with Alzheimer's.
What
an amazing legacy Betty and Rolland leave
behind in all of you! You have all been a
great
testimony of caring.
Your
family is a wonderful example for all of
us to see.
Gratefully,
Dr.
Jill
E-Mail: drjill@thememorydoc.com
http://www.thememorydoc.com or
http://www.dontforgetmemoryloss.com
Toll free: 1-877-490-3538
Local: 1-954-323-8474
**********************************
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***********************************************
*Jill Joyce is author of "Don't Forget: What Drug and
Insurance Co.'s Don't Want You To Know About Memory Loss."
(Still Waters Publications). Now, in addition to her book and
E-book, you can purchase her CD's, coming products, and
powerful memory vitamins at: http://www.thememorydoc.com & http://www.dontforgetmemoryloss.com.
There are many places to purchase similar products & nutrients.
However, additional vitamins, etc. are on the way to this site.
You see, Jill only picks products that she finds to be of
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working with memory loss & memory loss prevention. Plus, she is
attempting to share the best ones with you at the best prices
she can get.
***********************************************
* Schedule Jill To Speak At Your Next Meeting If you're
interested in having Jill speak at your hospital, church,
synagogue, association, or organization on the topic(s) of
"Memory Loss Prevention and Recovery," feel free to call
1-877-490-3538 or 1-954-323-8474.
You can also email Jill at: drjill@thememorydoc.com. ***********************************************
* Copyright Notice/Reprint Policy Please feel free to share the
complete contents of this publication with as many people as
you'd like (However, no changes may be made to its content
without written permission). Please give proper credit to: Jill
Joyce author of "Don't Forget: What Drug and Insurance Co.'s
Don't Want You To Know About Memory Loss" http://www.thememorydoc.com. Reference to this
newsletter, is, of course, always appreciated.
***********************************************
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Copyright 2004
Don't Forget
PO Box 670686
Coral Springs, Fl 33067
USA
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