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Alzheimer's Caregiver Story  

A Scottish Memory Loss Memoir  

Why all people should take Phosphatidyl serine (PS) and Phosphatidyl choline (PC) for a Better Memory

Stop Brain-Damage from Stroke & Avoid Alzheimer's at the Same Time

Cell Phone Dangers

Learning About Memory Loss Through Autism's Lessons

Terminology of Memory Loss: Glossary &  The Most Severe Type of Memory Loss

Age Related Memory Loss Problems

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The Memory Doc by Jill Joyce PhD
at "http://www.thememorydoc.com/ezine.html"

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In Memorial

Betty Santerre was a devoted mother, beloved  and survived by her 11 children and husband Rolland. Betty passed away August 10, 2005 after suffering from Alzheimer's for several years. This newsletter talks a bit about the year prior to her death... 

Volume 1/Issue No 4 September 30, 2004

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In This Issue:

* Mission Statement
* Memory Quote
* Article About My Sister/ Victor Frankl/ Note to My Sister-- Jeanine--as She Cares for Her Parents with Alzheimer's
* Freebies & the Memory Loss Prevention & Recovery Institute
* Please Refer This Newsletter

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Welcome to "TheMemoryDoc.Com," the Internet magazine for people of all ages who want to learn more about preserving and protecting the brain from memory loss and also for those who want to help persons who already have memory loss to recover and overcome this problem.

* The Memory Doc's Mission Statement is: To inform people in simple terms about ways to prevent and overcome memory loss using the most professional and therapeutic methods possible by offering awareness, education and new research.

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QUOTE OF THE WEEK
Viktor E. Frankl
From "Man's Search for Meaning"

"When a man finds that it is his destiny to suffer, he will have to accept his suffering as his task: his single and unique task. He will have to acknowledge the fact that even in suffering he is unique and alone in the universe. No one can relieve him or suffer in his place. His unique opportunity lies in the way in which he bears his burden."

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Hello, everyone--

Just arrived back to Florida after running away from Hurricane Jeanne! Hard to believe this has been going on for so long! But I'm back and the state of Florida appears to be recovering.

Today I'll be talking about another "Jeanne," who also packs quite a bit of power, but the good kind: the power of love. I will be examining her as a caregiver in her role to her parents with memory loss.

Her lessons are vital to all of us who wish to preserve our memories and avoid the stage of life she is tackling. At the latter stages of serious memory loss, many families and caregivers must simply struggle to help loved ones hold on to their human dignity.

And though I'm anxious to preserve any in tact memory, I'll never tell you that a person in the latter stages of Alzheimer's can defeat that damage. I'll never say one who has Korsakoff's syndrome from alcohol poisoning--will get over it. I won't tell you serious mental retardation can just be cured. It cannot.

I will tell you there are ways to improve the quality of life after a memory loss is full-fledged. I will even tell you there are going to be activities you can do, medications they can take, vitamins, nutrition and solid routines you can develop which will make life better for everyone.

Should you decide to take none of the suggested actions (if you have a severe memory loss situation), that is a choice you will have to make. However, it is not the choice I would make if I had a relative with a serious memory loss (unless I was forced to) because I have seen so much good come when people take the time to deal with it.

Perhaps this true story will inspire but also will offer motivation to continue preventing memory loss in yourself and your family . . .

MY SISTER-IN-LAW JEANINE JOYCE & HER PARENTS WITH ALZHEIMER'S

My sister-in-law, Jeanine Joyce, has been helping both her parents through their mid and final stages of Alzheimer's. Her efforts have been absolutely exemplary. Perhaps she doesn't realize the influence she is having on the rest of the family, but I have never witnessed anyone so incredibly inspirational, practical, and brave.

For the longest time, Jeanine's parents were in Florida while she was in the North East U.S. As their Alzheimer's became apparent, Jeanine began to visit them more and more in the home she finally chose for them when they could no longer be alone. Jeanine didn't just choose any home. She investigated. She researched. Then she picked a top-notch place with the highest reputation and credentials in the Alzheimer's industry. (I won't name them; I'm not looking for lawsuits here).

Nonetheless, when she or her siblings would visit, they would find nothing done properly for her parents. She was very frustrated as her expectations for the facility were so much higher. Finally, she made the decision she wanted to move them back up North near her home so she could visit them daily.

First of all, the process she had to go through to do this was amazing. But since they have been near her home, she has been able to go to the facility and visit them daily. She says, even at that, she must still tell the staff repeatedly the simplest things they should already be doing, like--to turn her mother over regularly in order to prevent bed sores. Or things like-- Would they please give her mom a bib rather than allow her to drip all over her clothes? She often finds her parents not cared for as she hoped even at the facility where they know Jeanine will be coming for a daily visit.

When she hangs out with her parents and they ask her what's up at home, she'll often include them in simple things like talk about her upcoming grocery store trip. She'll ask them to do routine things they always did-- like help her prepare her grocery list. She realizes the neglect of daily chores and activities is adding to their dull minds.

She also takes games with her to their bedside and they play and chat. Sometimes she plays simple concentration games or card games, particularly with matching or naming activities.

When their food comes, she'll talk to them about things written on their milk cartons, etc. They'll discuss whether a word is spelled properly on the carton or not and try to remember how they recall it was spelled. This is easy when someone actually takes the time to hang out awhile and just let normal conversations and discussions happen.

Jeanine's parents even recognize her better than they did before she moved them and she was unable to spend time with them because they were in different states.

Her mother used to say she didn't like it where they were in Florida. Now her mother is saying, "I like it here." So Jeanine knows the care has definitely improved.

For Jeanine, this change and bringing her parents to her home area is about their dignity and her peace of mind. She knows her mother wouldn't intentionally walk around wearing a sloppy shirt with spills all over it. Now she can help to make sure that's not the way she is living.

She also knows that when one of them dies the other one probably won't be far behind. Slowly, she watches and each day she realizes she will soon need to let go. Her mother is weakening. Her father is a bit stronger. But she is there for both of them.

For Jeanine, and all of you out there with relatives, spouses, parents or friends suffering from something like final stage Alzheimer's, what Jeanine has done will give her and her siblings peace for many years to come.

This may be my opinion, but I believe it is right to do the responsible, dignified thing and be there for those who were there for you when you were the weak one if it is at all possible. If not, somehow, we should at least be sure that our loved ones are cared for as we would attempt to care for them.

THOUGHTS FROM VICTOR FRANKL

Read the opinion of psychiatrist Victor Frankl quoted regarding his experiences dealing with those suffering in the prison camps of Germany:

"What was really needed was a fundamental change in our attitude toward life. We had to learn ourselves, and furthermore, we had to teach the despairing men that it did not really matter what we expected from life, but rather what life expected from us. We needed to stop asking about the meaning of life, and instead to think of ourselves as those who were being questioned by life daily and hourly. Our answer must consist not in talk and meditation, but in right action and in right conduct. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks which it constantly sets for each individual."

Frankl goes on to say that our unique opportunities lie in the way we each bear our burdens. Ah, yes. There it is again. The human challenge lies in choosing to respond well no matter how much we hurt.

A NOTE TO MY SISTER

Jeanine, please accept my applause. You are always one of my biggest heroes for this and so much more. You've been going through this for several years now and you just keep smiling and doing the right thing. You made it through two wonderful weddings this summer for two of your children and you were fun and loving and available emotionally to all of us just as you always are. You are truly one of the most impressive human beings I have ever known. Please join me in applauding my sister-in-law and in-love, Jeanine Joyce.

Until next time--as Bob Hope would say--thanks for the MEMORIES! Yes, God, thanks for our memories, the ones seated in our brains and the images projected there as well.

Thanks for visiting. Have a wonderful week, stay out of hurricanes, drop me an email when you have time, and scroll down to learn more about this project.

Best Regards from the Memory Doc,

Dr. Jill

E-Mail: drjill@thememorydoc.com
http://www.thememorydoc.com or
http://www.dontforgetmemoryloss.com
Toll free: 1-877-490-3538
Local: 1-954-323-8474

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Volume 1                    February 21, 2005

* Editor's Note

* A Scottish Memory Loss Memoir from Betty Santerre and Her      Daughter Jeanine Joyce 

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Dear Friends,

This past week, my sister-in-law, Jeanine Joyce, and her mom, Betty Santerre, sent me this beautiful poem accompanied by a little story.

Jeanine commented that the two of them picked this out to send so people might think a little bit more about how to treat persons with memory loss.

Betty has Alzheimer's and it is closing in on her. She is having a rough time right now, so please pray for her.

Here is Betty's poem as she prepares to move on to a better place. Jeanine always signs lower case (like e.e. cummings). So I'll leave her note for you as I received it . . .

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* A Scottish Memory Loss Memoir from Betty Santerre and Her Daughter, Jeanine Joyce

Thought you'd all be interested in reading this and maybe pass it on . . . hugs,

jeanine and mom

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When an old lady died in the geriatric ward of a small hospital near Dundee, Scotland, it was believed she had nothing left of any value.

Later, when the nurses were going through her meager possessions, they found this poem. Its quality and content so impressed the staff that copies were made and distributed to every nurse in the hospital.

One nurse took her copy to Ireland.

The old lady's sole bequest to posterity has since appeared in the Christmas edition of the News Magazine of the North Ireland Association for Mental Health.

A slide presentation has also been made based on her simple, but eloquent, poem.

And this little old Scottish lady, with nothing left to give to the world, is now the author of this "anonymous" poem winging across the Internet.

So if you judge those with dementia and assume they have nothing left to offer inside--remember this. While this little woman sat looking quite lost in her situation and bereft of her abilities--she composed this lovely poem:

               Crabby Old Woman

            What do you see, nurses?

            What do you see?

            What are you thinking

            When you're looking at me?

            

            A crabby old woman,

            Not very wise,

            Uncertain of habit,

            With faraway eyes?

 

            Who dribbles her food

            And makes no reply

            When you say in a loud voice,

            "I do wish you'd try!"

 

            Who seems not to notice

            The things that you do,

            And forever is losing

            A stocking or shoe?

 

            Who, resisting or not,

            Lets you do as you will,

            With bathing and feeding,

            The long day to fill?

 

            Is that what you're thinking?

            Is that what you see?

            Then open your eyes, nurse,

            You're not looking at me.

 

            I'll tell you who I am

            As I sit here so still,

            As I do at your bidding,

            As I eat at your will.

 

            I'm a small child of ten

            With a father and mother,

            Brothers and sisters,

            Who love one another.

 

            A young girl of sixteen

            With wings on her feet

            Dreaming that soon now

            A lover she'll meet.

 

            A bride soon at twenty,

            My heart gives a leap,

            Remembering the vows

            That I promised to keep

 

            At twenty-five now,

            I have young of my own,

            Who need me to guide

            And a secure happy home.

 

            A woman of thirty,

            My young now grown fast,

            Bound to each other

            With ties that should last.

 

            At forty, my young sons

            Have grown and are gone,

            But my man's beside me

            To see I don't mourn.

 

            At fifty once more,

            Babies play round my knee,

            Again we know children,

            My loved one and me.

 

            Dark days are upon me,

            My husband is dead,

            I look at the future,

            I shudder with dread.

 

            For my young are all rearing

            Young of their own,

            And I think of the years

            And the love that I've known.

 

            I'm now an old woman

            And nature is cruel;

            'Tis jest to make old age

            Look like a fool.

 

            The body, it crumbles,

            Grace and vigor depart,

            There is now a stone

            Where I once had a heart.

 

            But inside this old carcass

            A young girl still dwells,

            And now and again,

            My battered heart swells.

 

            I remember the joys,

            I remember the pain,

            And I'm loving and living

            Life over again.

 

            I think of the years

            All too few, gone too fast,

            And accept the stark fact

            That nothing can last.

 

            So open your eyes, people,

            Open and see,

            Not a crabby old woman;

                   Look closer . . . see ME!!

Remember this poem when you next meet an old person who you might brush aside without looking at the young soul within . . .   we may, one day, be there as well!

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How touching. . .

Truth being told is sometimes hard to receive, but even harder to speak. I'm grateful for this little story and poem from Jeanine and her mom Betty.

Thank you so much for sharing with all of us at this difficult time.

Blessings to you, your mom, your ten brothers and sisters and your dad, Rolland, who is also struggling with Alzheimer's.

What an amazing legacy Betty and Rolland leave behind in all of you! You have all been a great testimony of caring.

Your family is a wonderful example for all of us to see.

Gratefully,

Dr. Jill

E-Mail: drjill@thememorydoc.com 
http://www.thememorydoc.com or
http://www.dontforgetmemoryloss.com 
Toll free: 1-877-490-3538
Local: 1-954-323-8474

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*Jill Joyce is author of "Don't Forget: What Drug and Insurance Co.'s Don't Want You To Know About Memory Loss." (Still Waters Publications). Now, in addition to her book and E-book, you can purchase her CD's, coming products, and powerful memory vitamins at: http://www.thememorydoc.com & http://www.dontforgetmemoryloss.com.

There are many places to purchase similar products & nutrients. However, additional vitamins, etc. are on the way to this site. You see, Jill only picks products that she finds to be of serious therapeutic value and assistance after her 30 years of working with memory loss & memory loss prevention. Plus, she is attempting to share the best ones with you at the best prices she can get.

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* Schedule Jill To Speak At Your Next Meeting If you're interested in having Jill speak at your hospital, church, synagogue, association, or organization on the topic(s) of "Memory Loss Prevention and Recovery," feel free to call 1-877-490-3538 or 1-954-323-8474. You can also email Jill at: drjill@thememorydoc.com.

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* Copyright Notice/Reprint Policy Please feel free to share the complete contents of this publication with as many people as you'd like (However, no changes may be made to its content without written permission). Please give proper credit to: Jill Joyce author of "Don't Forget: What Drug and Insurance Co.'s Don't Want You To Know About Memory Loss" http://www.thememorydoc.com

Reference to this newsletter, is, of course, always appreciated.

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